Get Started

What you might need
Before starting the questionnaire, it may be useful if you have a copy of your medical information that includes information about:

  • your diagnosis
  • the hospitals or medical centres where you have been treated
  • the names of the treatments that you have received
  • your genetic information, if you have had genetic testing

If you do not have all the required information immediately available, you can come back to complete or modify the questionnaire at a later date.

FAQ - How to complete the questionnaire
You have questions on how to use the online questionnaire? Read our Questionnaire - FAQ (Frequently Asked Questions)

Come back to your questionnaire - anytime
You do not have to answer all questions in one session. You can come back to complete or modify the questionnaire at a later date.

Secure and Confidential
Your information will be entered via a secure connection and cannot be seen by anyone else. At the end of the questionnaire you will be able to print out a summary of all of the questions and your responses to retain for your records.

Consent forms:
For patient
For next of kin